Learning that your child has a disability is one of the most difficult things for a parent to hear. The anger, confusion, depression and devastation that go along with this news are all common reactions. It can be difficult for a parent to cope with this news when they don’t know where to go for help. Family Support Network’s Complex Care Management Program provides emotional support, information, and resources to parents of a child born “at risk” for a developmental or cognitive delay or having a serious medical condition.
“Complex Care Management”, is a set of activities designed to more effectively assist patients and their caregivers in managing medical conditions and co-occurring psychosocial factors. Most medical networks and governmentally provided programs provide a case management option for clients but do not guide the families or individuals outside of the constraints of the individual system. Youth with significant medical conditions and/or behavioral and/or mental health diagnosis have multiple layers of involvement with community resources, health provider agencies/networks, governmentally funded agencies and departments and health care providers. Little direction is given to families/youth outside of each agency independently. The goal of Family Support Network (FSN) is to provide case management that is complete and provides for connection and collaboration between healthcare sectors and community agencies to provide a person-centered or whole-person approach to care.
Every month the Parent to Parent Programs hosts support groups, please contact Ana Palafox to be added to the email distribution list for the following support groups:
SHIFT (Supportive Help in Family Transition)-Families who are experiencing a change of dynamic and lifestyle for their young adult child with special needs are often overwhelmed, frustrated and emotionally drained. Transitioning services from childhood to adulthood is daunting. So much need to be considered. Family Support Network's parent mentors are ready to assist you in sorting out the details. Topics will vary each month.
English/Spanish Support Group-provides an opportunity for parents/caregivers to share their personal experiences and feelings, coping strategies, or firsthand information about caring for a child with special needs.
If you would like more information on the Parent-to-Parent program, please contact Ana Palafox, P2P Program Coordinator at (714) 447-3301 ext 204 or email her at firstname.lastname@example.org